Early diagnosis & access to treatment critical for hemophilia
On World Hemophilia Day (17th April), healthcare practitioners and caregivers have reiterated the critical need for early diagnosis, access to treatment, and physiotherapy for people with Hemophilia to lead a near-normal life. With easy access to factor replacement therapy and physiotherapy, Hemophilia patients – especially children – can fight this life-threatening blood disorder. The risk of death from lack of basic knowledge and untreated Hemophilia is very high. They also laid strong emphasis on Government support to ensure availability of diagnosis facility, factor replacement therapy and physiotherapy at Government centres. According to Hemophilia Federation (India), there are over 20,000 registered patients with it. However, this number would be much higher, considering the population of India.
According to Dr Cecil Ross, Hemotologist, St John’s Hospital, Bengaluru, “On World Haemophilia Day, I want to highlight the critical role of early diagnosis and access to treatment in giving children a near normal childhood and life. Proper physiotherapy also plays an important part in ensuring that they remain active and healthy. The society and the government need to join hands to fight this blood disease, which can turn deadly in the absence of proper knowledge about the disease and lack of treatment. The current standard of care is to treat all children with regular replacement therapy called as prophylactic infusions of clotting factor concentrates to prevent bleeding.”
Children are innocent victims of Hemophilia. The fear of bleeding episodes, and mortality, prevents them from having a normal childhood, and takes a heavy emotional toll on their life and those of their parents and family. Since Hemophilia is a life-long medical condition, without access to proper treatment, children frequently miss school and have to always be alert to injuries.